What It’s Like Living In A Household With A Cerebral Palsied Boy, His Two Brothers, and A Maturely Immature Girl
Short answer: It’s chaotic.
Long answer: It is supercalifragilisticexpialidocious. According to the film Mary Poppins it means ‘something to say when you have nothing to say.’ And, indeed, there is nothing to be said to be said except…
Living in this household means that you will be in a constant state of pessimistic optimism. How could you be otherwise? You have this terrific developmentally delayed boy and his-trying-to-be-terrific elder sister who sometimes thinks far beyond her age and sometimes regresses back years below her age. You are in a dimension where you believe that the impossible is possible for your son, and that the possible is impossible for your daughter. Meaning that, you believe your son can learn to function as normally as possible, whilst believing that your daughter is hard done doing anything that should be possible for her at her age. Luckily, you have a palliative. Their brothers. They are as well-balanced as it is possible to be, and for most of the time are happy to amuse themselves with their own mind.
Living in this household means that you will be constantly demanded by the eldest and the youngest of the members to provide them with stimuli. Books, toys, videos you’ll buy by the box at school fetes. You’ll spend cold mornings in cold pools holding Yasin by the arms as he learns to swim. You’ll take long walks with AF as she uses her ‘Herbs’ book and points out the varieties you’ll find in the compound. You’ll spend long hours discussing the wide range of thoughts AF has. You’ll have to cope with grouchy children when you can no longer help but not provide them with any stimuli for today.
Living in this household means that you will be subject to academic interrogation. Your Master’s degree will be exhausted by two intensely curious children and Google will be your best friend.
Living in this household means that you will have to give up for the time being your own ambitions. Yasin needs constant care, and it is hard to find a suitable nanny. He needs to be put on his standing frame and therapy ball and you will need to take him to school. You will be bitter over this, but a little smile from Yasin will clear up your hurt feelings.
Living in this household means that you will need a sense of humor. Otherwise, you’ll plummet into the darker roads that parents of special needs children take.
Living in this household means that you will need a pinch of commonsense. Because the eldest lacks it and the the middle one abounds in it.
Living in this household means that you will have to be content with being alone for long periods of time.
Living in this household means that you will need to be content with a messy house. For the cleaner only comes twice a week, and the mess-up squad comes 24/7.
Living in this household means that you will need to experience all this and more.