Sibling rivalry. My ex-psychiatrist once subjected me to the brutal allegation that I am victim to sibling rivalry. Of course, it seems merely amusing now, but then, it hurt me a great deal.
Yasin needs major attention – with feeding, bath-time, playing, speech therapy, occupational therapy, physical therapy, aquatherapy, changing, grasping objects and other gross and fine motor skills. But somehow, I’d never resented it. I knew that Yasin needed help with lots of things that he couldn’t do for himself. I read anything I could get my hands on on the topic of cerebral palsy. I understood, and I loved him all the more for understanding. Read more ->
I am a special needs sister. I refuse to be pitied for helping to take care of my brother. But of course, there are things I am not allowed to say in order that no one may have cause to pity me. I call them secrets because they are things that I cannot share with my age peers, and they are things I must keep hidden in order to put them at ease. Read more ->
Faris, Yasin’s brother, came up to his Mummy today and said, “Mummy, why is Yasin like that? My friend asked me and I didn’t know what to answer.” Well, as this is Faris, a boy of few words who demands that others follow his way of speaking, we simply said, “Yasin’s mind is different from other people’s because something happened to it when he was small. Because of that, it affects his arms, legs and speech. Read more ->
Short answer: It’s chaotic.
Long answer: It is supercalifragilisticexpialidocious. According to the film Mary Poppins it means ‘something to say when you have nothing to say.’ And, indeed, there is nothing to be said to be said except… Read more ->
Step into the Child Development Center and see me and other special needs children navigate their way through the disorienting world of physical therapy, occupational therapy and speech therapy. Walk past the wall-to-wall windows, which give glimpses of well cultivated gardens and bowers where tree boughs shade the basking birds. Sit in the waiting room and greet the aged women talking in sepulchral tones as they fuss over their fidgety children. Wait until Yasin’s therapists call you in and lead you to one of the therapy rooms where Yasin is placed onto an adjustable therapy bed. Change him into his exercise clothes and step back. Read more ->
Yasin is now 4 years old. And still immobile. So, we have to carry him upstairs and downstairs and around the house. I don’t complain against that. It’s just sad that I, AF, won’t be able to carry him any longer. He slides down people’s laps and arches and sways his back. It’s difficult to hold him. He often suddenly bangs his head on to the floor. Helping him exercise and do his therapy will be more difficult. Read more ->
Yasin loves to be engaged in play. As his sister, I try my best to adapt and tailor play to his needs. He has a gazillion cousins and cousins-once-removed, all of whom love him to bits. But they are often at a loss as to how to naturally include him in play. Well, here’s what I have to say to them. (Not that I know best. They are always free to pick, mix, change, slice, and so on. I’d just like to share with them what works for me and for him when we are playing.) Read more ->